Does Any one Know Someone W/ KLS (Kleine-Levin Syndrome)

My Aunt has just been diagnosed with this Very rare an Horrible Disease.
I had to for the first time this morning watch my Aunt go from a normal talking adult to what we thought was her dieing but she just when out (sleep ) then woke up with the mental capacity of a 3 year old , it was the most heart wrenching thing i have ever had to deal with so far in my life an i hope too never ever see it agian but it is just not the wish i will get .
My Question is is there anyone Here this is just a shot in the dark , That might know or have some one in their family that has this disease . If so Could you Please Help in any way possible .

Thank You So Much in Advance