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Thread: A different kind of request

  1. #9
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    Good Question. They do not seem to have the results.

    Threat of law suit is next. Heck, I've taken Zach to him while I was on duty the two last times. You think the sidearm might have helped.

    I am going to try one more thing first. My pastor's wife, Mrs. Pastor [img]http://www.**********.com/iB_html/non-cgi/emoticons/tounge.gif[/img] , works for the doctor's office I am going to see if she will get Daugherty's number for me and I will get him involved. I will have him call the doctor he wanted Zach to see.

    I am hopeful with my doctor. She mis-diagnosed me twice, it turned out to be a serious problem needing two surgeries. Hopefully she is still cowed and workable.

    I am also still waiting to hear from Zach's specialist. He is one of the regional experts and has some serious pull, if he will use it.

    Well, I have aired and feel a little less cornered. Thanks
    I am just like a Super Hero, but without the power or motivation.................and the funky suit.

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    I sure hope and pray he gets better.I know what you mean about not being able to find a doctor that will believe you,my mother kept going into the er for extreme pain,and they just kept telling her it was acid reflux,until finally (when she was so severe she would have otherwise died) she found a doctor that believed her and she was diagnosed with PANCREATITIS (sp) and she had to get her gall bladder removed. Anyways I sure hope zack gets better.
    [img]http://home.**********.com/users/pondboy/Neps/Neps%20sig..JPG[/img]

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    Cool

    Hmm, I'm not a doctor but I've watched a lot of discovery channel. [img]http://www.**********.com/iB_html/non-cgi/emoticons/wink.gif[/img]

    I agree with Schloaty, it sounds like he is suffering from a sleeping disorder, possibly from a breathing problem. If he isn't entering into a deep enough sleep state, he would be tired and weak. The lack of sleep could also weaken his immune system and explain his fevers and throwing up.

    You could try video taping him sleeping and seeing if he gets full paralysis so he isn't moving when he sleeps.

    Also, a long shot but you could check the environment for the deadly mold and or some kind of pollution that isn't agreeing with him.

    You might have to have him knocked out somehow so they can get a blood sample.

  4. #12

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    Sorry to hear about your son. I also will pray for you, your son and the doctors. This could be a long shot but maybe you could post about your son on a medical web site message board, like webmd.com. Maybe someone else has a loved one that had the same thing. Try to stay as positive as you can and remember all of us will be praying.


    -buckeye

  5. #13
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    He deffinately does not sleep enough, but I guess I should add a little info. One side is losing strength faster than the other. Also he has now developed headaches and nose bleeds. It may all be tied in and it may not.

    I agree that he is sleep deprived. Now if a doctor would agree that would help. I use video tapes to put him to sleep (he watches them) and it works, but he tosses and turns and wakes up three to four times nightly. He sleeps like me, but I have never required too much of the stuff. We have a sleep study in town if the doctor will send him. Ah, I just need a good doctor. It just a frustration.

    I have talked to the doctors about giving him something to calm him down so they can get all the required blood, but that can throw off the results.

    I am thinking that he has another infection. The worst had settled into his spin, but that was years ago. Most are centered in the head. If it is really bad I suppose it could cause the nose bleeds and deffinately cause the headaches and weakness, except for the side thing, but maybe it could be due to balance. When he had these in the past the only way another good doctor could detect them was through x-rays or MRI. That's what I am hoping for anyway. He has had so many of these that his lymphnodes behind his ears are blown out and oversized. The good one that did the x-rays checked the largish lumps. She said they will probably get bigger as he goes through life, but we can live with that. Maybe between infection and sleep deprivation it can be explained.

    Hey, this kid is kind of sickly, but you would not believe how wonderful and good natured he normally is. He makes sure that anytime I buy something for him, I buy the same for his brother and sister. And what a sense of humor.

    Hey Buckeye, that is a really good idea! Also I am doctor shopping.
    I am just like a Super Hero, but without the power or motivation.................and the funky suit.

  6. #14

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    Copper, i'm so sorry to hear that. It sounds like half of us here are asthmatic, and the other half know an asthmatic. I know that cold air triggers mine, or sudden changes in air temperature. Obviously there's more involved here than that, but it's all i can think of that hasn't been mentioned.

    It's a very rhythmical things for me, too. Around 3-4AM, the asthma is very bad, especially if my sleep is disturbed (or i'm not asleep) during that time.

    One other thing that occurred to me is a parasite- you said he eats a lot but is losing weight. Is there any chance he has worms of some kind?

    The MRI sounds like it would be crucial, to me. There are much more sophisticated forms of MRI than the basic one everyone is familiar with, and hopefully you can get him to be checked under one of the new types. There's one called a Functional MRI that can detect what parts of the brain are involved in what activities, and if it seems normal. I wonder if they might not find some abnormalities there that are causing these symptoms.

    Sorry to grasp at straws, but we all want to help here. It's really sad to hear about your problems with the doctor. Have you tried contacting a doctor at the Mayo Clinic? Perhaps you could interest one in the seemingly intractable, new disease.

    My prayers are with the two of you.
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  7. #15
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    Yes, Before Daughtery left he check for a water parasite, but it was not there. I do not think anyone has checked for a liver or intestinal worm.

    I have asthma to, but it is now fairly mild now. Mine is also triggered by temp changes...cool (pun).

    My daughter was diagnosed with asthma last winter. It is on a drastic rise.
    I am just like a Super Hero, but without the power or motivation.................and the funky suit.

  8. #16

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    Question

    I hear you.
    One of my sons was born with problems, I changed pediatricians 5 times before he was one year old just because I didn't agree with them. He was diagnosed with asthma very young, he is now almost 17, still not very well controlled with meds. He has had a sleep study - he has sleep apnea. Not something to mess around with - his father died at 43, his grandfather also at 43 (he's not looking forward to that age already) from major heart attacks. I encourage you to get some doc, even your old good doc, to refer to the sleep study lab. Go to specialists, they're the ones who will hunt & will refer to even other specialists. Go to big city medical centers/teaching hospitals, they have the research facilities. Be prepared to see lots of doctors until you find someone in whom you feel confident. We are now down to just 3 different specialists, currently. Find a new psychologist, too. And while it's true giving him anti-anxiety meds will affect the lab results some, it won't matter for every thing they could check for. Ask specific questions, sometimes they can tell just how much it would affect it & they can allow for it. Some results would be more helpful than no results. No lab work is worth torturing your son for, either. There are topical analgesics they can put on his skin before the draw, too. Don't accept pat answers, push - then push some more. I think you know how to do that. (Sounds like the sidearm didn't help that much. Maybe you should go in uniform to every visit.) Don't be intimidated by the medical profession. They don't have all the answers even though, in general, they like to make you think they do. And, as you have already pointed out, you know your son better than they do. There; from a mother (& nurse) who's been through some. Be glad to chat with you more about it. Good luck!
    BTW - my son wants to be a police officer. [img]http://www.**********.com/iB_html/non-cgi/emoticons/wink.gif[/img] He's our black sheep, no other law enforcement people in the family. (And a couple in the family who are shy of them.)
    Restore our biosphere, create a new culture of kindness.

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